MPKU - No formula supply!!!

MPKU – No formula supply!!!

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MPKU – No formula supply!!!


December 30, 2009 in Uncategorized

I can't believe it! Anticipating the Christmas mail situation I ordered my next batch of Lophlex LQ at my pharmacy way earlier than usual. That was about 2 weeks ago and I ran out 3 days ago. I have been calling the pharmacy and they in turn have been calling the suppliers, who, guess what? haven't even recieved them yet from wherever they get them!! How is someone supposed to do the maternal PKU diet if the flipping suppliers are unreliable and don't plan for Christmas delays?? Luckily I had some Vitaflo sample sachets (which is disgusting!) and the hospital has some emergency supplies, but what if i lived in the country? I don't, but what if I did? It's not good enough! I've NEVER had a problem with supply before!

3 Reviews of MPKU – No formula supply!!!

  1. Registered: Apr 24, 2009

    Posts: 0

    Cornwall, New York

    Wow! That reminds me of when I was a child…. They lost my food when I was a child and had a very strict diet of just low-pro foods. I was pretty much starving for a couple of weeks because they lost my food!!! Glad to hear you did have a couple of options, but I do understand the frustration.

  2. Registered: Sep 12, 2006

    Posts: 0

    Franklin, Wisconsin

    That stinks. I hope they get the formula to you soon, but in the mean time it sounds like your only option is to make due with the other formula samples that you have. Good luck and keep us updated.

  3. Registered: Jul 1, 2009

    Posts: 0


    I’ve got some emergency supplies now but they won’t last past Monday. Fingers crossed!

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