MPKU - Waiting...

MPKU – Waiting…

Avatar of Anna

MPKU – Waiting…


August 3, 2010 in Uncategorized

A week doesn't seem to go fast enough when you're beginning the maternal diet again. I know it's been longer than that since I last posted, but I'm waiting, waiting... What for? My level! I did one last Saturday morning when I was in Melbourne and got 662, which is probably about right, since I'd only been doing the 6g and 4 Lophlex for about 4 days by then and before that I'd been overseas trying to eat well but also having my 'last' naughty this and my 'last' naughty that foods, lol. So I've done another one on Sunday afternoon and I can't wait to see how much the level would have dropped by in 1 week. I know it's only Tuesday but eek! I normally get the results by Wednesday-Friday if I send it in on Monday. I've been having roughly 6g/day until then but not counting strictly, just saying 'yeah that's 1 gram, that's 3 etc.. so I have about 1 left etc', but after doing my level on Sunday I've been counting properly now, because I reckon my level will have dropped a bit but certainly not to where it needs to be. I reckon it'll be about 350 or so. We'll have to wait and see! Waiting... waiting...

3 Reviews of MPKU – Waiting…

  1. Registered: Apr 24, 2009

    Posts: 0

    Cornwall, New York

    I hate waiting on results. They always seem to take too long!

  2. Registered: Feb 1, 2010

    Posts: 0

    Tucson, Arizona

    I wish we had a home monitoring system that gave quick phe results–like diabetics have. I’ve wanted one for about 10 years! wouldn’t it be nice to know without having to send off a blood sample and waiting a week?! 

    Good luck with the MPKU diet!

  3. Registered: May 27, 2009

    Posts: 0

    , Florida

    I heard the PKU monitoring device may only be a year or so away…

Add Comment Register


Your email address will not be published. Required fields are marked *

Comment *

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>

Processing your request, Please wait....


Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional