Where to begin. I am 22 years old. I was diagnosed with classical pku when i was 9 days old. Growing up int he newborn screening era ive had a lot of advantages with my pku and growing up. It seems like now days it is getting way more advanced day by day. Cambrooke has been established, Biomarin is a huge group that helps us out, we have Kuvan and its been amazing so far, and all different types of therapies and medical advances that have made pku and the small daily struggles a little easier for some of us. Since I was little Texas has always had their small pku community and this is where i tell people, i would not change the fact that i have cpku at all....if it weren't for cpku i would not be surrounded but an amazing group of doctors, or friends, or have such a strong support network that will never leave me. I am happy that i have that and not many "normal"