My name is Rachel Wynne, and my son, Dylan Wynne has been diagnosed with PKU. He is 8 and a half weeks old and is the most precious little baby! He was diagnosed with PKU at 7 days old and started the formula right away. We were able to get his levels down within the first month and they have been staying between the recommended 2-6 range. The last result came in and his levels were 11.2. The dr and dietician tell me not to worry and that we will get them back down, but I am a nervous wreck. I am just so worried about him! Does anyone have any advice about the levels? Is it normal for them to go up sometimes?