Avatar of Benjamin


September 29, 2011 in Uncategorized

Hello all, My name is Ben Mclaughlin i am 25 years old and am new to this site. I would like to start by saying that i have pku and my pku life has been up and down until about two years ago. I was off of the pku diet from age 15 to 21 and have been on it since and improving it every day. I am currently taking kuvan and have been for about 2 years. This kuvan is such an aswome thing and glad to be taking it. I just got married over the summer and am looking to make a family in the near future.

2 Reviews of newbe

  1. Registered: Jun 11, 2010

    Posts: 0

    Sittingbourne, INTERNATIONAL

    Nice to hear such a good story….pretty similar to mine really :) welcome 2! If you are on facebook, there are lots of support groups on there that are all very good….unless of course you are already a member! :)

  2. Registered: Dec 2, 2009

    Posts: 0

    Phelan, California

    Oh the joys for the ups and downs for PKU….my story is very much like yours off diet for way too long back on diet been about 2 1/2 years it gets better. This site is great though for when you are having a hard day its nice to talk to people who have PKU and deal with what you deal with. Its a great support system :)

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