I am a sister/caregiver of an older (55yo) PKU male. He was 1 1/2 yo when he was detected. i was wondering if anyone else has or knows of anyone else in this age range and what they are dealing with. My brother is fairly high functioning. He works at Walmart and can take fairly good care of himself. As a matter of fact he stays home while I work and can use a bus system to get home from work when he doesn't ride his bike. He is a great joy to our family, he has encouraged my granddaughter to pursue a career in special education. She has worked with the handicapped since she was 12, now 18 and going to college in August. Any insight anyone can give, I'd appreciate it.