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May 7, 2012 in Uncategorized
Registered: Oct 31, 2006
Bernard [BJ] said on May 9, 2012
it is sometimes hard but you will get threw it good luck !!!!!
Registered: Apr 25, 2012
Elena said on May 12, 2012
And yeaterday we have had our second test – its 3,86 or smth like this – so we are in normal amount! Thanks God! :):)
Registered: Jul 22, 2009
Stephanie said on May 17, 2012
That is a great job. Keep up the good work!
Elena said on May 17, 2012
Thank You! Tomorrow we ll have new number
Registered: Mar 28, 2012
Lisa said on May 24, 2012
Hi Elena,My newborn was too recently diagnosed with PKU back in March. It has been very difficult and stressful but we are managing. My little girl Zoey is now 2 months old and we finally found her mark to keep her levels stable. At first it was too high (at birth), then became too low, then went high again and just finally last week got it to a 3.2. So it takes trial and error and time to find the “phe” tolerance but eventually you will. Only to find out it will change again soon because your little one grows so fast lol.Good luck with getting your levels down and just be patient.
LisaPhoenix, AZmom to zoey, 2 months, CPKU
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