PAL PEG trial day 22

PAL PEG trial day 22

Avatar of stephanie

PAL PEG trial day 22

May 9, 2011 in Uncategorized

i found out that last wednesday my level was 0!!!!! so they reduced the study drug from .4 mg per kilo to .2 mg per kilo which mean 1 shot now! still dont know daily phe but i have not been drawing phe sticks since wednesday but i have to start them again daily since they changed my dose for the next 2 weeks. they have added tylenol and benadryl since i was having some local reactions the past few days. will keep you updated!!!

4 Reviews of PAL PEG trial day 22

  1. Registered: Apr 13, 2010

    Posts: 0

    plant city, Florida

    this is incredable! it is so promising for my 1 yr old! do they know how this will work with insureance or about how much the shots will cost?

  2. Registered: Nov 12, 2009

    Posts: 0

    , Georgia

    OMG!!! I am sooooooooo happy for you!!! Thank you so much for keeping us updated

  3. Registered: Mar 27, 2010

    Posts: 0

    Landisville, New Jersey

    Wow that is awesome!

  4. Registered: Jul 1, 2011

    Posts: 0

    sheridan, Indiana

    That’s so awesome!! Congratulations that’s a real accomplishment!
    how long have you been on the shots. Are there side effects to them?

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