PAL PEG trial day 22

PAL PEG trial day 22

Avatar of stephanie

PAL PEG trial day 22

May 9, 2011 in Uncategorized

i found out that last wednesday my level was 0!!!!! so they reduced the study drug from .4 mg per kilo to .2 mg per kilo which mean 1 shot now! still dont know daily phe but i have not been drawing phe sticks since wednesday but i have to start them again daily since they changed my dose for the next 2 weeks. they have added tylenol and benadryl since i was having some local reactions the past few days. will keep you updated!!!

4 Reviews of PAL PEG trial day 22

  1. Registered: Apr 13, 2010

    Posts: 0

    plant city, Florida

    this is incredable! it is so promising for my 1 yr old! do they know how this will work with insureance or about how much the shots will cost?

  2. Registered: Nov 12, 2009

    Posts: 0

    , Georgia

    OMG!!! I am sooooooooo happy for you!!! Thank you so much for keeping us updated

  3. Registered: Mar 27, 2010

    Posts: 0

    Landisville, New Jersey

    Wow that is awesome!

  4. Registered: Jul 1, 2011

    Posts: 0

    sheridan, Indiana

    That’s so awesome!! Congratulations that’s a real accomplishment!
    how long have you been on the shots. Are there side effects to them?

Add Comment Register



Comment

Your email address will not be published. Required fields are marked *

Comment *

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>

Processing your request, Please wait....

    Archives

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional