pal peg trial week 11

pal peg trial week 11

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pal peg trial week 11

June 29, 2011 in Uncategorized

i just got levels back from june 20th and they were 5 and they were undetectable before that. so the lower dose 0.125 per kilo is working but i wonder if it will go higher??? people who went off the drug because of reactions their levels went up almost instantly back to predrug levels . so i wonder if my dose is too low. i only have 1 1/2 weeks left on the drug then i have to take a holiday(time off drug) before i start the extension. the extension will last until the drug is fda approved and availble bby prescription. they hope that durning the trial i will be able to give the shot myself instead of being given by a nurse like it is now.

5 Reviews of pal peg trial week 11

  1. Registered: Nov 12, 2009

    Posts: 0

    , Georgia

    Please keep us updated!!! I sure hope the shots keep working for u!

  2. Registered: Dec 2, 2010

    Posts: 0

    palm springs, Florida

    Lets us know what going on with the trial…I keep my hopes…so far you are doing great!!!

  3. Registered: Jun 17, 2011

    Posts: 0

    Llandeilo, INTERNATIONAL

    Aled said on July 6, 2011

    Yes plejase keep it coming, i’m really interested. Good Luck.

  4. Registered: Sep 4, 2007

    Posts: 0

    Aurora, Nebraska

    THIS IS SOOO COOL!! I haven’t visited PKU.com for a while. I was sooo excited when I saw your blog!! I must say I’m kinda jealous! :-) We may finally be close to having a cure!!! Keep us updated!!

  5. Registered: Jun 17, 2011

    Posts: 0

    Llandeilo, INTERNATIONAL

    Just a quick question are you on a low protein diet whilst on the peg pal treatment, or are you on a full on meat and all diet? Many thanks in anticipation of your reply.
    Cheers
    Aled

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