peg pal phase 3 - 3/25/13

peg pal phase 3 – 3/25/13

Avatar of stephanie

peg pal phase 3 – 3/25/13

March 25, 2013 in Uncategorized

well they moved me to the more concentrated dose and now i only take .5 mil a day 5 days a week and my levels are hanging in at about 2.  i feel amazing. im nearing the 2 year mark in a about a glad i have found others that are trying this "miracle" drug. i wish them the best of luck... i hope they all have the success i have had.please feel free to message me anytime for more info or to check on how im doing 

7 Reviews of peg pal phase 3 – 3/25/13

  1. Registered: Dec 6, 2009

    Posts: 0

    Thessaloniki, INTERNATIONAL

    Thank you so much for pioneering for our children. I hope everything will turn out fine and soon pku will be just another disorder that requires a single shot to substitute for normal diet….

  2. Registered: Sep 15, 2012

    Posts: 0

    Philadelphia, Pennsylvania

    Thank you so much for your insight! I am beyond delighted to hear of someone with such success with peg pal. It gives me such hope for my daughter’s future!

  3. Registered: May 7, 2011

    Posts: 0

    Wellingborough, INTERNATIONAL

    Hi, what a great story. Are you eating a free diet and taking supplement/formula still? How much protein were you eating prior to peg-pal?

    Cheers Karen

  4. Registered: Sep 23, 2012

    Posts: 0

    Arlington, Virginia

    Are you completely off diet (eating milk, cheese and meat without restriction)?

  5. Registered: Jun 17, 2011

    Posts: 0

    Llandeilo, INTERNATIONAL

    I havent sent anything for a while but it sounds like its going well. Great news. My two children are handling their PKU well at the moment. Ple3ase keep on updating its good news for everybody interested in PKU.

  6. Registered: Jun 6, 2013

    Posts: 0

    Bellevue, Washington

    Any updates on PEG PAL? Any idea how long phase 3 trials are supposed to last?


  7. Registered: Mar 23, 2011

    Posts: 0

    Millersburg, Indiana

    Any updates? Are you off diet now?

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