Have you ever wished those around you knew how difficult it is to stick to a low-Phe diet? Even for those who are closest to PKU – family, friends, caregivers, clinicians – it can be challenge to understand what it’s like without having experienced it for themselves.
That’s why this year, in honor of PKU Awareness Day on December 3rd, we are challenging those who treat, know and/or care about someone with PKU to join together in the first ever Phe Challenge! Take part in this special initiative to help spread awareness about PKU and the challenges that people with PKU face each and every day. Together we can make a difference and spread the word about PKU! Here's how it works:
Follow a low-Phe diet for 2 days.
Know someone with PKU that you would like to support? Follow their low-Phe diet for 48 hours, eating the same amount of Phe or protein that they are allowed to eat each day. Visit PKU.com for low-Phe recipes and diet tools.
Take a short 5-question survey to share your experience Click here to access the survey - a donation to the NPKUA will be made in your name!
Don't forget to spread the word!
You can help increase awareness about PKU. Share your story on the PKU.com Facebook page or your own social media. Encourage your clinic team, family and friends to participate and help spread awareness about PKU!