I was wondering if anyone else has run into this problem. I have a 3 week old daughter who has PKU. I called my insurance to see how much was covered for her dietician and her genetic consultation visit but they said they cover nothing . I asked them why they said my employer does not have it in their plan. I was very upset . I am just getting used to the idea of her having pku. I called our state insurance called badgercare. I live in Wisconsin. They said I can apply for benefits and I should be able to get insurance through them. I might have to pay a little towards the insurance but thats ok as long as she gets the correct care.