PKU Awareness day/month!

PKU Awareness day/month!

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PKU Awareness day/month!

May 1, 2010 in Uncategorized

Happy PKU Awareness Day and beginning of an entire month!! I hope you all have a great month... what is everyone doing to celebrate? Look to my newest post on my blog here: for some ideas! Shortlink

6 Reviews of PKU Awareness day/month!

  1. Registered: Feb 1, 2010

    Posts: 0

    Tucson, Arizona

    As I wrote on your site that you put a link to, I’m excited about our PKU Picnic here in Tucson that’s coming up on May 23rd. I am not sure that we will have HUGE numbers (compared to the events in Phoenix that are usually quite populated). I currently have 5 families give “yes” RSVP’s, and my expectation was about 4 families. There are still three weeks for people to decide, also. :) My husband and I took some time today to put together some games for the PKU picnic–So far we have Autograph Bingo with a slight PKU twist, and an adaptation of a game we played at our church’s trivia night called “dead or alive” that I think I will call something like “higher or lower”. Due to the Arizona heat in late May, I am trying to decide whether to equip the kids with water guns or water balloons–I’m leaning toward water guns because of easier clean-up! :)

  2. Registered: Feb 1, 2010

    Posts: 0

    Tucson, Arizona

    ps-I forgot to mention that a mom of a PKU kiddo in the area is getting food donations so we’ll have snacks (low pro and non-low pro alike), as well as goody bags. Hunter, I saw on facebook that you RSVP’d in the affirmitive that you’re coming to our Picnic–I’m guessing in spirit only? It’d be awesome if you actually are planning a trip to AZ–we have a spare bedroom! ;)

  3. Registered: Nov 3, 2009

    Posts: 0

    , Massachusetts

    haha yes unfortunately that is an ‘in spirit’ confirmation! can’t wait to hear how it goes though!

  4. Registered: Feb 26, 2007

    Posts: 0

    Chicago, Illinois

    Sarah said on May 4, 2010

    I’m planning on walking in my area’s PKU research walk-a-thon in June. Anyone can e-mail me if you want to make a donation!

  5. Registered: Jul 14, 2009

    Posts: 0


    The PKU Association of N.S.W had a PKU picnic in Parramatta Park on the 1st May. There were around 40 people who came and enjoyed the day tasting formula’s and trying the low protein foods which Nutricia and Vitaflo kindly supplied. There were games and the park for the smaller kids to play in. Everybody had a great time!

  6. Registered: Feb 11, 2008

    Posts: 0


    Rian said on May 10, 2013

    There’s a PKU awarness day? I wasnt aware ha (pun intended) then again it my only be an American thing i’m Irish, my twin and I both have PKU and werent aware that there was a ‘cyber community’ for PKU people. It’s great

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