PKU Legislation

PKU Legislation

Avatar of Ben

PKU Legislation


February 4, 2011 in Uncategorized

I have been considering contacting my legislative representatives in hopes of obtaining better health coverage for people living with PKU. I am an adult living with PKU in Illinois, and currently there is no insurance/state assistance with the high costs of low protein medical foods. I have seen that this is a disturbing trend across the entire country. I know some states require insurance coverage for children, but once you reach the age of 18, the insurance companies are no longer required to provide assistance, as if everyone with PKU is magically cured when they turn 18. Has anyone here fought to get legislative changes to help PKU families, and if so, could they offer any advice on the best approach to take? I know that the Medical Foods Act was introduced into congress in 2010, and think that is a great starting point, and I encourage everyone with PKU, and their families to contact and urge your representatives support of this bill. Any help would be appreciated. Thanks!

1 Review of PKU Legislation

  1. Registered: Oct 31, 2006

    Posts: 0

    Taylor, Michigan

    i have no idea but i am with what you are saying there needs to be something done .

Add Comment Register


Your email address will not be published. Required fields are marked *

Comment *

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>

Processing your request, Please wait....


Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional