PKU Novel -- Need YOUR Help!

PKU Novel — Need YOUR Help!

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PKU Novel — Need YOUR Help!

June 18, 2010 in Uncategorized

Greetings to all! My name is Kenneth and I'm a 21 year old living in Wyoming. After a recent Summit meeting for PKU, I've gotten some great ideas for a novel. This novel will be about a person growing up with PKU and the challenges he/she may go through. I'm in need of your help! I want YOUR stories -- Are you a mother? Tell me how you felt when you received news that your baby had a genetic disease. Are you a father? Tell me what you did after the initial shock. Parents? -- What challenges did you find (or are you finding) raising your PKU child. Patient? -- What has been your greatest challenge, your most memorable moments, and your greatest accomplishment pertaining to PKU been? Or tell me anything else related... Have you met anyone with PKU or another disease that left a great impression on you? I need your stories to help make this novel a reality! I will keep you updated on the progress of the book once I get the stories I need... be apart of the story, help make a character come to life!!!

4 Reviews of PKU Novel — Need YOUR Help!

  1. Registered: Jun 21, 2010

    Posts: 0

    Warren, Michigan

    I am curious, is this a kind of existentialist type novel, or is there some kind of direction or final conclusion or closure to the story?

  2. Registered: Jun 23, 2006

    Posts: 0

    Meeteetse, Wyoming

    There will most likely be some kind of closure or end to the story. Clearly, though, I can’t predict where the characters might go — they grow as I write and personalities of the characters will change as the book becomes reality. This will be, hopefully, a novel based on bits and pieces of stories I can get from others willing to share. Does this answer your question?

  3. Registered: Apr 13, 2010

    Posts: 0

    plant city, Florida

    i have a 5 month old and i was devistated, just to know he will never be able to have just a happy meal from mcdonalds killed i know that sounds a lil bit dumb but thats how i felt, it took me a good 2 months before i started to realize that this wasnt that big of a deal my baby will be able to talk, see, hear, hug and kiss me, i should be thankful that he only has PKU! His diet has become 2nd nature to me so far, hes perfect! any other ?’s i would be happy to help with

  4. Registered: Jun 23, 2006

    Posts: 0

    Meeteetse, Wyoming

    Thank you for your comment, Maverick. Your story was fabulous and I’ll add it to my log. Thank you for making a contribution to the novel. If you have anything else you would like to share, please do.

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