PKU progress in AL

PKU progress in AL

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PKU progress in AL

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September 11, 2009 in Uncategorized

Hey everyone me again! just want to update everyone on my quest for leglislation to change in AL. went & talked to our State Reps. & they all are willing to make some new laws for AL. & people with PKU! in Jan. of 2010. we will be going to testify in Congress about what our State Reps. have writen up for us to State fund food & formula. This is a great day!!! Now im working on getting a chapter of PKU alliance set up in AL. I still need peoples support in AL. My grandson Dayne who is 15 months old got his last levels & they were perfect best levels hes ever had!!! He is doing great & is starting to gain weaight. If anyone in AL. who has PKU please get in touch with me, we really need your help!!!!

2 Reviews of PKU progress in AL

  1. Registered: Apr 24, 2009

    Posts: 0

    Cornwall, New York

    GREAT NEWS!!! Keep it up. Don’t back down!

  2. Registered: Jan 24, 2010

    Posts: 0

    Remlap, Alabama

    Do you have any updates on AL legistation? I have 16th old son who is hyper-phee and I would love for the state to help him out in regards to paying for all his special foods. Please let know what you are able to find out. I am willing to do what I need to do to make his life easier!

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