PKU progress in AL

PKU progress in AL

Avatar of Tina

PKU progress in AL


September 11, 2009 in Uncategorized

Hey everyone me again! just want to update everyone on my quest for leglislation to change in AL. went & talked to our State Reps. & they all are willing to make some new laws for AL. & people with PKU! in Jan. of 2010. we will be going to testify in Congress about what our State Reps. have writen up for us to State fund food & formula. This is a great day!!! Now im working on getting a chapter of PKU alliance set up in AL. I still need peoples support in AL. My grandson Dayne who is 15 months old got his last levels & they were perfect best levels hes ever had!!! He is doing great & is starting to gain weaight. If anyone in AL. who has PKU please get in touch with me, we really need your help!!!!

2 Reviews of PKU progress in AL

  1. Registered: Apr 24, 2009

    Posts: 0

    Cornwall, New York

    GREAT NEWS!!! Keep it up. Don’t back down!

  2. Registered: Jan 24, 2010

    Posts: 0

    Remlap, Alabama

    Do you have any updates on AL legistation? I have 16th old son who is hyper-phee and I would love for the state to help him out in regards to paying for all his special foods. Please let know what you are able to find out. I am willing to do what I need to do to make his life easier!

Add Comment Register


Your email address will not be published. Required fields are marked *

Comment *

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>

Processing your request, Please wait....


Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional