pku question

pku question

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pku question

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August 4, 2012 in Uncategorized

i am in my early 40s and i have noticed over the last 6 years feeling tired at some point daily. in work i get up and walk around and it passes . i would love to hear from other pku people on diet if this is related to pku .

2 Reviews of pku question

  1. Registered: Dec 29, 2011

    Posts: 0

    Anacortes, Washington

    Thanks for the comment on my post first of all. And yes its all level related. The last 4 weeks I’ve been really doing well. I, for the first time since I was 6, got my level to 10.8!!!! (other than pregnancy) I have noticed , more energy, I’m happier, my tremors aren’t gone but have subsided a bit. And clearer thoughts! I was told by my doc that the exhausted feeling is all to do with higher phe levels in your system. Even if your controlled if it reaches a point where your body becomes distressed by any means the exhaustion is there. You have to remember that with PKU )and higher levels than your own body likes) your system goes into overdrive working continually to rid the phenylalinine from your system. Your working out without even knowing it only its your metabolism that is working hard not your muscles. Hence the exhaustion. :)

  2. Registered: Dec 29, 2011

    Posts: 0

    Anacortes, Washington

    P.S. what type of PKU are you?

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