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August 4, 2012 in Uncategorized
Registered: Dec 29, 2011
Nickelle said on August 4, 2012
Thanks for the comment on my post first of all. And yes its all level related. The last 4 weeks I’ve been really doing well. I, for the first time since I was 6, got my level to 10.8!!!! (other than pregnancy) I have noticed , more energy, I’m happier, my tremors aren’t gone but have subsided a bit. And clearer thoughts! I was told by my doc that the exhausted feeling is all to do with higher phe levels in your system. Even if your controlled if it reaches a point where your body becomes distressed by any means the exhaustion is there. You have to remember that with PKU )and higher levels than your own body likes) your system goes into overdrive working continually to rid the phenylalinine from your system. Your working out without even knowing it only its your metabolism that is working hard not your muscles. Hence the exhaustion.
P.S. what type of PKU are you?
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