so here is my crazy idea...
i have made a facebook group called PKU
just to see if it makes life easier for us all to keep in contact as i dont really use this site and most people have a facebook account these days right...??
any way give it a go search PKU and we will take it from there spread the word and lets see if this works :)
i am happy to help anyone in any way with PKU as well as learn from others, its what i have always wanted to do :)
so i look forward to seeing you all on there