Ramona

Ramona

Avatar of Tammy

Ramona

July 22, 2009 in Uncategorized

Hello! I am a parent of a 17 year old son with PKU. We have not had the opportunity to meet many people with PKU. The few people we have been in contact with have all had a fatalistic view of this metabolic disorder. My family and I have always felt lucky that Eric was born with something that we could control through diet. We were thrilled when we found out that he would be as happy and healthy as any other child out there as long as we taught him correctly about his diet and needs. I am looking to chat with others who have a positive outlook and how they live their lives to the fullest. I am interested in chatting with those who have PKU and those who support them.
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