realizing

realizing

Avatar of tammy

realizing

April 17, 2011 in Uncategorized

im 32 and just now accepting the fact that i have pku, not to say that my whole life ive been off diet, but just now realizing that pku is a part of me and that no matter what i do or say i am pku, just this past 3 wks i hv really been focused on drinking my supplement and not eating the big no nos. i was born in georgia usa on an army base there they dont test for pku at birth, soo for the first 4 months of my life i went undiagnosed then i was put on diet but as i got older my parents didnt hv money for the expensive medical food so i didnt eat that but ate reg. food just not meat and or dairy prducts. thru my teen yrs it was a struggle cause i felt so differant other kids were eating the food i was told i couldnt hv, i couldnt understand why i couldnt, yes thru my teen yrs and young adult years i snuck food i wasnt supposed to hv, it made my feel normal, when my 'rents found out i snuck it the were ferious, they made me stand in front of a white wall and told me if i kept it up that is all i would see, i felt bad but wanted sooo bad to feel normal, at age 19 i had my first son, thru the pregnancy i didnt really manage it very well i didnt know i was prego until i was 6mths, so i spent the rest of my pregnancy in the hospital 4mths, my new marriage suffered he cheated while i was in the hospital and shortly after the birth he cheated again what made things worse was he myself and our new baby all had pku, as of today i am divorced from his and with a great guy that i plan on marrying in june, we hv two children together ( him nor my two youngest hv pku) and he has never cheated on me and never gave me suspision of it, i think when i turned 32 this feb. i started realizing that im not the only person out there with pku, it has made me realize that i am special and pku is nothing to be ashamed of, that everyone who has this struggles and that whenever i need help or support from someone other than my amazing b.friend i can always turn to my pku family. i love you guys and im glad to be apart of this family. tammy

3 Reviews of realizing

  1. Registered: Oct 12, 2010

    Posts: 0

    belfast, INTERNATIONAL

    TAMMY YOU ARE GREAT TO STRUGGLE SO HARD. I HAV PKU AND ITS STILL A STRUGGLE WHEN I AM SRESSED ,LIKE NOW, I EAT ALL THE HIGH PROTREIN FOOD . I KNOW ITS DIFFICULT .STICK UP FOR YOURSELF GIRL

  2. Registered: Feb 5, 2011

    Posts: 0

    Fort Wayne, Indiana

    thanx abbi i like u get stressed but now when im stressed and i get those cravings i stop and take a breath and picture my next clinic visit when i can sit there and tell them i had the craving but thought of my phe levels i want sooo badly for them to be low, i know u can do it if i can i know u can.

  3. Registered: Feb 5, 2011

    Posts: 0

    Fort Wayne, Indiana

    I went to my first clinc in 2 yrs. Looks like I’m on the right track! I hv to do diet records on evry mon tues and wed and do blood dot wed nite. When I send in my next dot I will start kuvan. Yay meeee!! I was so amazed at my man he was so wonderful I believe. That I can concore this pku and hv pku and it not hv me now that I know I hv 100% of my mans support that means sooo much to me. I go back dwn ther aug 10th so we can see if I actully respond to kuvan. And I guess I’m. Not classic wow kool

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