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April 13, 2011 in Uncategorized

Hey pkuers!!! so I would be really interested in talking with teens with pku! I'm 16 years old and was diagnosed with pku when I was 3 days old! It'd be great to hear some experiences from others! Especially those who have been to summer camps because this summer I'm going out of state to summer camp and would like to hear how people have handled thier food issue while away!!

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  1. Registered: Apr 25, 2011

    Posts: 0


    Maisy said on May 1, 2011

    Hey I’m 16 too and I’ve been away on camp a few times! I only have mild PKU, but I still didn’t eat most of the foods that were served on camp. I had to inform the camp organisers about my diet before I went and told them the kinds of things I eat. If it’s a serve yourself kind of system, you can just pick out the fruits and vegetables from that, or bring your lo pro foods to the kitchen and see if they’ll cook them for you.

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