I am looking for information on diet and supplements for an ADULT FEMALE w/PKU. I don't know much about PKU and really want to help my sister in law in providing her with tools that will let her be the best she can be under the circumstances. She was not treated for PKU at birth and is now 47 years old. She cannot read, write, or understand the exchange of money. However she is bright and participates in sports, bowling, swimming, track, golf, she works at a local grocery store as a grocery bagger and goes to a school for mentally handicaped. I beleive she can be and do more if she were to receive a special diet and lower the Phe levels, but her family beleives that it is too late for that to do any good. I'm fighting a battle that it seems no one wants me to win. At this time, my sister in law is drinking about a half gallon of milk each day, eating chocolates, red meat at every meal along with bread, rice, potatoes and cheese. She is active, plays softball, and bowls on a regular weekly basis so her family dosn't see any reason for her to be on a special diet. She has been put on Risperdal 1mg, once a day to help keep her calm, she gets angry and upset easily lately. I really think she would get more help by changing her diet instead of taking Risperdal. However I am not the guardian or parent, so I need all the information I can get in order to present it to the family. If anyone knows of a book, web site, or any information on this subject, please let me know. So far all the information I find is for people that were diagnosed with PKU at birth and have been on diets and supplements. I need information for someone who slipped through the crack, someone who has PKU and who, as far as I know, has never been on medication or any diets to lower her Phe levels. I have a small window of op here, her mother is in the hospital and I am now the care giver. I would like to try a diet lower in protien to see the affect if any on my sister in law. I just don't know where to start. I will keep trying. I plan on asking my Dr. for help as well, maybe he can refer me to some information somewhere. I don't plan to stop until I get the information I seek. It may not be my child, but I feel every person deserves to be the best they can be and I want to see her soar.