Avatar of Sam



May 28, 2010 in Uncategorized

Ok so i've never written a blog before. I just started on this website to find some new friends who is going through the same things I am. I am 16 with PKU and sometimes I hate having it but sometimes its a good thing. I dont really know what else to write. I really need to talk to some people :)

7 Reviews of Starting

  1. Registered: Feb 1, 2010

    Posts: 0

    Tucson, Arizona

    Welcome! I’m Kristi, I live in Tucson, AZ, am 27 years old, and have PKU. The teen years are probably the toughest for most people on the PKU diet. My toughest time was probably middle & high school. Now, following the diet isn’t so hard for me, it’s dealing with the adult side of the responsibilities that’s the biggest pain for me–mostly insurance!

  2. Registered: Apr 24, 2009

    Posts: 0

    Cornwall, New York

    Hi! My name is Katie and I have PKU too. I am 25 years old and live in NY. I remember too not being fond of my diet when I was a teenager. In the end, it will make you a stronger person. I used to dread telling people about my diet, but now I realize it isn’t so bad. People actually find it fascinating. I also realized that it is easier just to let people know so that I don’t have to deal with the fear of no food where I go everytime. It used to be birthday parties, but now its different work events and weddings. I agree with Kristi. It is difficult fighting insurance battles when you are older. I hope you find this website useful as you meet people of all ages with PKU.

  3. Registered: May 28, 2010

    Posts: 0


    This is the first time i’ve ever written a blog, Our son thomas was diagnosed with pku last year, his phe level has been up and down but mainly up were at our ends at trying to get him to eat his food. hes very cross and suffers from eczema. I feel like all day im cooking food and there will never be an end. So if there is anybody out there who can give me advice and some help, please, much appreciate

  4. Registered: Feb 2, 2010

    Posts: 0

    Palmerston North, INTERNATIONAL

    Hi there :)
    I’m Malany, I’m 19 years old and have PKU. I moved out of home last year and have been managing my diet myself, which hasn’t been easy.
    If you wana chat at anytime just message or something.

  5. Registered: Nov 3, 2009

    Posts: 0

    , Massachusetts

    hey! i’m hunter, i am 24 years old… the high school years were tough and a time when i lost touch with many of my friends my age with pku… i always wonder if having those people to talk to would have made things easier! please use this website and other people near you to help support you… it gets better and easier and nowadays who doesn’t have or know someone with some sort of diet restriction! don’t let it get you down and you are right sometimes it is tough but it makes you a stronger person : ) so it is a good thing sometimes too!

  6. Registered: May 28, 2010

    Posts: 0

    coquitlam, British Columbia

    Sam said on June 7, 2010

    Wow thank you everyone for your advice. I hope I can interact with people my age or anyone with PKU because i only know one other person! thank you for your support! :)

  7. Registered: Sep 8, 2009

    Posts: 0

    , Washington

    well welcome to the site we can a relate to what you have written. My name is Chris and I am 19 if want to talk I am online most days so hope to talk with you soon


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