taylin paech

taylin paech

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taylin paech

July 18, 2010 in Uncategorized

hi every one im new to this site, i had found out that my son taylin now 5 mths has got pku and still learning about it, any advice for when he starts soilds would be great, im a little scared to tell you the truth!i have 3 kids under 3 and flat out already

5 Reviews of taylin paech

  1. Registered: Apr 24, 2009

    Posts: 0

    Cornwall, New York

    Hi, congrats on your baby boy. He is adorable! My name is Katie and I am 25. I have PKU. No need to be scared. With the right foods and formula, your son Taylin will be fine. While browsing this site you will see many successful PKU child and adults. Most of all, you will meet parents with young children who have PKU too. My mom would have given anything to have this site when I was born.

    I don’t know too much about when to give solid foods, but I do know there will be many responses from others with PKU babies.

    Anything else, please feel free to ask!!

  2. Registered: Feb 1, 2010

    Posts: 0

    Tucson, Arizona

    I’d like to basically echo everything Katie said. :) I’m Kristi, I’m 28 and have PKU. I agree, your son is a cutie pie. I’m sure that it’s exhausting having three young children–somehow my mother in law did it, but she didn’t have to deal with the PKU diet and figuring what it was all about until I entered their world, 24 years later. :) I was baby #1 for my parents and my only brother is 8 years younger. I think it is probably a good thing that babies are born not eating solid foods–it allows parents of babies with PKU to adjust and slowly grow into the PKU lifestyle. There is an amazing online PKU community, and if you post a question on here or the PKU listserv, you’ll probably be overwhelmed by responses! I am not sure where you live, or what kind of support you have from your PKU dr. and dietitian, but I know that here in AZ our dietitian is very good at holding a mom/dad’s hand and helping them with the adjustment. (or so I’ve been told, the one my parents had when I was diagnosed is looooong gone) If you ever have any questions, don’t hesitate to ask–either on a blog, or to me personally!

  3. Registered: Oct 8, 2009

    Posts: 0

    Scarsdale, New York

    Hi. My daughter, Olivia, is 10 months old and has PKU. She started rice cereal at 5 1/2 months and slowly progressed to other cereal flavors. She then began the yellow veggies: squash, then carrots, and then sweet potato. We tried green beans last. She has not had peas yet as they are very high in phe and she would only be allowed a tablespoon or so. She then moved on to fruits. I have not given her bananas yet and am not sure if I will. She must have the same food for 5 days in a row to rule out allergies so it has been a slow progression. She has had some of the Gerber puffs and just tried Cheerios for the first time this morning. She is only allowed 170 mg/phe a day from food so she only has a few tablespoons of cereal and maybe three jars of baby food.
    I have a 4 year old daughter who does not have PKU. It is becoming more difficult each day to keep Olivia away from Emily’s foods and teaching Emily that she can’t give the baby anything. Olivia wants food when she sees her sister, so I usually give her the puffs then.
    I know you are so busy with the kids, but if you need to vent, please feel free to message me. I can even send you my home email if you would like.

  4. Registered: Sep 12, 2006

    Posts: 0

    Franklin, Wisconsin

    My name is Breanna. I am nineteen years old, and I have PKU like your son. This site is definitely a great source of support. A lot of successful teens and adults with PKU tend to float around here, and I am sure they would be more than happy to help you out. If you have questions about anything at all feel free to post here, and I am sure someone will respond. Is your clinic nearby? If so use them as much as you possibly can! They are one of the best supports you can have available to you. If traveling to your clinic often isn’t a possibility ask your dietitian if you can get his/her email address and phone number so that you can keep in close contact.

    Sorry I couldn’t be much help as far as starting solids goes.

  5. Registered: Apr 7, 2010

    Posts: 0

    bundaberg, INTERNATIONAL

    thankyou every one for all your help im sure i will have heaps more quetions for you so we go to brisbane clinic in 3 wks

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