The challenges of Managing PKU

The challenges of Managing PKU

Avatar of underline

The challenges of Managing PKU

June 20, 2009 in Uncategorized

"Hi All, First off, I just logged on to PKU.com and was pleasantly surprised to see the new site. I think this will go a long way in letting all PKUers communicate with each other. I just wanted to share my thoughts on the challenges of managing PKU - its +'s and -'s. Just a running commentary: I have always looked at diet management as an extension of leading a healthy life. I eat a lot of fruits and veggies and they give me all the energy that I need to leave an active lifestyle. I keep long hours at work and average 5 - 6 hours of sleep. However, I am still able to go about my day without any fatigue, thanks to my eating habits and regular exercising. I think managing PKU leads to a better life management -- the ability to control a strong urge or tendency to a non-healthy lifestyle. Yes, I don't get to eat a burger every day, but honestly, I wouldn't want to. It's a matter of making the right choices and I am so glad I learnt it the PKU way.Cheers!"

5 Reviews of The challenges of Managing PKU

  1. Registered: May 2, 2009

    Posts: 0

    Topeka, Kansas

    diet management .. taking care of myself pku wise is the way i can be the best i can be .. in all areas of my life

  2. Registered: Apr 6, 2006

    Posts: 0

    , INTERNATIONAL

    I totally agree! living a health PKU lifestyle is what counts, healthy eating, idea phe levels plenty of exercise is the way to have a great life!

  3. Registered: Mar 12, 2010

    Posts: 0

    Washington, District of Columbia

    Establishing a healthy diet for any chronic condition is important, especially if you have PKU.

  4. Registered: Sep 16, 2009

    Posts: 0

    , Minnesota

    paul said on June 8, 2010

    hi my name is paul im 12 years old and sometimes i just dont like pku how about you ?

  5. Registered: May 17, 2010

    Posts: 0

    Nekoosa, Wisconsin

    I have a hard time staying on diet and i have been trying to live better. I have ate meat for bout 15 years and i really like it. Now the PKU food i never grew accustomed to. The low protein noodles are fine as well its noodles you can always make them better by adding a little tomatos sauce to it which has no added protien. I just cannot see myself eating just fruits and veggies with pasta as well for the rest of my life. even though that is what i should do.

Add Comment Register



Comment

Your email address will not be published. Required fields are marked *

Comment *

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>

Processing your request, Please wait....

    Archives

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional