I made an appointment to get my Phe level drawn on Monday, I haven't got it drawn since I have been back on the diet. I wish I would have got it taken just before I started, oh well too late for that. I am interested in knowing what some of your treatment plans are, how often you get your levels drawn, was it more often when you first re-started your diet to figure out how much Phe and protein you could eat??? I am kind of out on my own, I have a genetics doctor but am working with my therapist (she is a CNS, APRN). I suppose I should see a dietician? and my genetics doctor? Why does this have to be so hard? Anyway, any suggestions would be helpful. I started logging my food intake, that is helping keep track of what I am eating so it will be easier to adjust my diet when I find out what my level is.