trying to be good.

trying to be good.

Avatar of Lauren

trying to be good.

November 3, 2010 in Uncategorized

Well i live in Manchester, England and from reading other peoples blogs I have found that america are way ahead with the devlopment of P.K.U. I have never met or talked to someone else with P.K.U so I feel really alone. Although my family and friends are great am 21 years old and feel lost with having P.K.U. I find it really hard to sick to the diet but i know i have to in order to start a family when the time comes. I am trying to get my levels down and try and get a hold of my P.K.U even though I have had it my whole life I feel like am learning everything for the first time when I go for my appointmenat for the first time on my own. I am sure I will get it all togeather so I will keep you all posted.

1 Review of trying to be good.

  1. Registered: Sep 8, 2009

    Posts: 0


    Hi Lorry..

    My names Nicole and am from Scotland. I have classical PKU. Ave never spoke to anyone with PKU either till i found this website.. i have met alot of lovely people from all over the world, and i agree America are really advanced with PKU, i guess the only advantage we have is we get our Prescriptions free :-) x

    Wat type of PKU do u ave ??

Add Comment Register


Your email address will not be published. Required fields are marked *

Comment *

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>

Processing your request, Please wait....


Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional