Ty

Ty

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Ty

October 12, 2010 in Uncategorized

Wow, I can't believe my wifey and I have made it this far since our son was born Jan 11, 2010. We are very happy and excited that we now know more about PKU and how to treat it. We are also so happy that he has mild PKU. Thank God!! As for being a dad for the first time I am learning many new things about him. I was so freaked out and nervous when my wifey said "I'm pregnant". I thought for a moment that the world was bout to end, but turns out I love being a dad. I love being with him, playing with him, taking him everywhere etc. My wifey gets jealous because when I am in the house, all my son wants to do is be with me. She thinks he loves me more than her. I say.....maybe. Lol!

6 Reviews of Ty

  1. Registered: Oct 9, 2010

    Posts: 0

    BELLEVILLE, Ontario

    HI TY:
    FIRST TIME WE HEARD OF MILD PKU AND WOULD LIKE INFO, AS TO WHO OFFERED THIS TERM ( ? ). WE HAVE BEEN DEALING WITH TREATED AND UNTREATED INTHE PKU FOR 40 PLUS YEARS. AS PKU IS THE ONLY DISORDER TREATED AND CURE BY DIET OF WHICH A PERSON MUST BE ON THE PHE FORMULAS AND UNDER STRICT HOSPITAL FOOD CONTROL TO REDUCE LEVELS THAT OTHERWISE ARE DANGEROUS TO SOMEONE WITH PKU. THE CONTROL OF PKU SHOULD ( I CANNOT STRESS FULLY ) SHOULD BE UNDER MEDICAL ADVISEMENT OF A MEDICAL PROFESSIONAL DEALING WITH AND HAS UP TO DATE KNOWLEDGE ON PKU AND TREATMENT OF SUCH.

    WE WOULD LIKE INPUT FROM OTHERS WHO HAVE READ YOUR POST AND OUR COMMENTS. THE TRUTH IS ANY PERSON BORN WITH PKU THAT IS TREATED CAN AND WE’VE SEEN SO MANY REACH THEIR GREATHEST PROTENTIAL IF TREAT PROPERLY AND THEIR DIET CONTROL FOR LIFE. WE ALSO SEEN VERY MANY UNTREATED IN HOSPITAL SETTINGS THAT WERE NOT ON DIETS SUFFER SO MUCH ———– BUT WHEN PLACED ON A DIET UNDER MEDICAL SUPERVISION WERE ABLE TO LIVE IN GROUP HOMES AND ADVANCED BEYOND OUR GREATEST HOPES AND DREAMS.

    ANY QUESTIONS FEEL FREE TO CONTACT AND HOPEFULLY WE MAY BE OF SERVICE.

    WEC4U    

  2. Registered: Apr 13, 2010

    Posts: 0

    plant city, Florida

    its called Hyperphenylalaninemia

  3. Registered: Feb 18, 2010

    Posts: 0

    Los Angeles, California

    Hi, well since being a first time dad, with a son that has PKU, I do not know very much about what levels of PKU are there. All I know, is that according to his nutritionist from Children’s Hospital, she stated that his blood levels are low in the 200’s. Now when my son was born, his blood levels were around 400’s. It is from my understanding that other newborns with PKU have a much more higher level in their blood. Also now that we started giving him his special formula called Periflex and mixing it up with a tad of Enfamil his blood levels, have gotten down to the 200’s and also they have not rise up.

    I believe this is because of his special diet and because we don’t give him finger foods, or other type’s of foods that have a higher protein level. That is what I understood.

  4. Registered: Jun 28, 2006

    Posts: 0

    No Location

    Congratulations and welcome! Your son is adorable (photo) and sounds like you are doing a great job!

  5. Registered: Oct 13, 2010

    Posts: 0

    Nineveh, New York

    Congratulations.i know how u feel I was so worried when I got pregnant(I am the one with PKU). I now have 3 sons.A US Marine, a college student and a healthy 3rd grader.. All our children are Gods Blessings ..
    Boys love their Daddys 

  6. Registered: Apr 24, 2009

    Posts: 0

    Cornwall, New York

    your son is so cute~ welcome to the site! My name is Katie, 25, and have PKU. If you ever need anything, feel free to ask!

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