hi! my names Mary Caite :) i have classical PKU and i made a previous blog about a new drug called PEGPAL. This is just an update on how im doing and where i am in the trial since many cannot wait for results! I have been on the drug since august of last year, and have been slowly increasing the dosage to match the amount i need to go completely off diet! Right now, i am injecting myself with 4 shots of an enzyme on monday, and friday. My levels have been hovering around an 11 to about 15. This is without formula and on a loose diet. [aka: not weighing or keeping track of food, but still no meat or high protein foods]. they are really close to telling me to go off diet! my levels have recently went from a 21 to a 4!!! and they havent been a 4 in 15 years! ill keep you guys updated if you have any questions just comment and ill get back to you ASAP!!!!!!!!!!!