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October 26, 2011 in Uncategorized
Registered: Feb 26, 2007
Sarah said on October 27, 2011
Doctors have found out this is fairly common in PKU’ers. I don’t recall exactly where the deficiency comes from but I take 1000i.u. of Vitamin D every day. It becomes more of a concern when we get older. It causes a higher risk for broken bones & osteoperosis.
Registered: Sep 12, 2006
Breanna said on November 2, 2011
If I remember correctly vitamin D comes mainly from milk and the sun as well as some other foods such as fish and eggs. Obviously these are foods that we cannot eat, so it makes sense that we might be more at risk of developing a vitamin D deficiency. I also found out about two years ago that I am deficient in vitamin D. It is really easy to fix though by simply taking a vitamin D pill everyday.
Registered: Mar 27, 2010
Landisville, New Jersey
Lauren said on November 5, 2011
Wow I didnt even realize we were at risk for vitamin d deficiency. I’ve read about the risk for osteoporosis though. Thanks girls! Brea, have ever experience pain in your joints from the deficiency? I get a dull achy pain in various joints, that was the origanal reason I went to the doctors when he had me checked for vitamin d. I’m thinking maybe this could be the reason I’ve been having joint pain?
Registered: Aug 11, 2009
khyrsten said on November 5, 2011
Yup I get yelled at everytime my doctors see my Vitamin D is low… I take them every day and try to get sun but its never enough I still get accused of not taking it :/
Oh wow that stinks. My dietician told me that sometimes its not always our fault, that there are some PKUers that can’t absorb vitamin d, thus becoming vitamin d deficient. Have you been checked to see if your body is absorbing it or not?
Registered: Dec 6, 2006
Kristy said on November 7, 2011
I have been off my diet since I was 12 I am now 36 years old and for the past 5 years I have been taking Pre-Natal vitamins and Calcium & vitamin D pills, before you ask no I was not planning on having a baby any time soon when I started. I told my dietician and she said that was a good thing to start doing since I am not drinking my formula at all. Maybe you can try it and see if it helps any.
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