You know it is really good for children with PKU to meet others with PKU. You see, my dad did a great job of caring for me and making low protein foods- the bread was NASTY (but he tried), but the spaghetti was awesome. He kept me on a strict diet and I did well. However, I never met another person with PKU. Many born shortly before me probably went untreated and were not able to function well. But, obviously, I was not the only one with PKU. I grew up not really understanding this. I grew up feeling like an alien. Not a foreigner, but from another planet. Needless to say, I was very private about PKU. I hid it from people. When I was really young I said I had a special diet, but as I grew that information was never shared. Once I was given the green light to have meat and stop with the drink, I really hid it all away. Whenever it came up I said I was allergic to milk (I have only tried milk once- thinking it was my formula when I was about 5 and nearly- or maybe literally- threw up) or just changed the subject. PKU was a source of shame to me. I had times in my life when I was bitter and angry for not being "normal." I don't know how all the pieces fit together to make me feel such shame about PKU, but it did. I get a real joy reading things by people like KATIEMAG16 and BREAMARIE91 (and others, this is not an exclusive list!!), who seem very well adjusted. All the parents and grandparents, etc of children with PKU, look to folks like them and learn how to avoid the shame. Or look at stories from folks like me who learned shame from events in our lives and try to help the children to shun the shame. Realistically there is no reason to be ashamed of PKU. Like I always tell people about other conditions: "Every one has something." Just my $.02!