Would love advice

Would love advice

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Would love advice

December 1, 2010 in Uncategorized

Hi, My name is Shayna and My son has just turned 6 months old. His dietition is starting him on baby food. I'm having a bit of a problem understanding how to make his menus. My strong point was never math and she isn't really explaining it to where i can understand it. So if anyone has any advice or an easier way to calculate the PHE and Cal and all i would love to hear from you. I really love my son and don't want to screw anything up so please if anyone can help that would be great!!!

6 Reviews of Would love advice

  1. Registered: Apr 13, 2010

    Posts: 0

    plant city, Florida

    how did she tell u to do it? its easier for me if i measure by gram….. say applsauce….. i know that applesauce is .10mg per gram so if u weigh out 50 gms on the scale u take the 50 x .10 = 5mg of PHE idk about the calories we dont have to keep track of that but if u want my # so i can explain it better i woyuld love to help, where are you located?

  2. Registered: Jun 27, 2009

    Posts: 0

    , New York

    In the beginning the math seems very overwhelming and complicated, but it does become second nature in time. Do you breastfeed, or add similac/enfamil to your son’s formula? How you know how much phe your son currently gets a day? (If not let me, ask your dietician)

    We calculate mg of phe at our clinic since it is the most precise way. Do you have Virginia Schuett’s Low Protein Food List? It is the PKU bible in our house. I know she is currently updating the book, so if you do not have it ask your nutritionist for the Gerber Food list that contains the phe amounts.

    I am assuming that you are going to start with a baby cereal. Here is how you calculate the phe:
    Looking in Virginia Schuett’s book in the Baby Food section Gerber Rice Cereal, dry (page 43) it lists this important information:

    Measure Weight Phe Mg/gm
    1 tablespoon 4 gm 15 mg 3.75

    The first time you try cereal, you are not going to know how much your son is going to take so you need to know the mg/gm so you can determine how much phe he had. Talk to your nutritionist about what she wants you to mix the cereal with — his special formula, enfamil/similac, breast milk, water. If you choose a phe free option — his special formula or water the calculation is a bit easier. For one tablespoon of rice cereal you would add 5 tablespoons of liquid. We know from Virginia’s book that 1 tablespoon of dry cereal is 4gm on the scale. There are 15 gm of liquid in one tablespoon so 5 tablespoons would be: 5 x 15 = 75 gms of liquid.

    Take your scale and put a cup on it and “zero” it out. Measure out 75 gms of liquid. Remove the cup. Add the bowl you are using for feeding your son, zero it out. Add 4 gm of rice cereal. Now pour in the premeasured liquid. The total weight should now say 79 gm (75 from the liquid + 4 from the cereal).

    Now to calculate the phe. I am going to assume that the nutritionist will tell you to go with water or his special formula, so no extra phe will be added (If she tells you something else, drop me a line at brenda@cookforlove.org and I will help you recalculate).
    Phe from cereal — 4 gm weight x 3.75 mg phe per gm of food = 15
    Phe from liquid – 75 gm weight x 0 mg per gm = o
    Total phe = 15

    To determine the mg/gm you take the total amount of phe and divide it by the total weight. In this example it would be 15 mg phe/ 79 gm = .1898, which would be rounded off to .19 mg/gm.

    Next you feed your son. When he is done you place the remainder of food on the scale and see exactly how much he ate (remember to account for the weight of the bowl). If you have 20 gm weight remaining, then you would take the total weight you started with and subtract what you have left (79 gm – 20 gm =59 gm). To determine the phe it would be the amount he ate (59 gm) times the mg/gm (.19), or 59 x .19 = 11.21 mg phe.

    Reading this will make your head spin, but put your scale in front of this response and as you are doing it, it will hopefully become a bit clearer. Know that every mom goes into full panic the first time foods are introduced when their baby has PKU. I promise you regardless of your math skills, it becomes easier in time. You will get the hang of it!

    Take care,
    Brenda mom to Molly 10 CPKU
    Founder of Cook for Love, Inc.
    http://www.cookforlove.org   

  3. Registered: Dec 1, 2010

    Posts: 0

    Anderson, South Carolina

    Thankyou so much that actually made alot of sense to me. How she explained it was making my head spin. But i guess when it’s written out in front of me it helps a bit for me to understand. She explained it pretty much the way you did but didn’t really show me how to do it. I need examples in order to understand things lol.

    I am located in Anderson, SC.

  4. Registered: Apr 13, 2010

    Posts: 0

    plant city, Florida

    omg i was the same way… i needed her to explain it like 3 different ways b4 i got it so i understood…..

  5. Registered: Dec 8, 2010

    Posts: 0

    Riverside, New Jersey

    hi.my name is Sandy.I have 5 month old son with PKU too

  6. Registered: Dec 1, 2010

    Posts: 0

    Anderson, South Carolina

    I got my dietitian to explain it to me again at his last appointment and also had her show me examples. It’s actually not that hard. Thanks so much for the help everyone!!!

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