KEEP IN MIND

PKU isn't just a diet thing. It's a brain thing.


PKU can impair your ability to think, feel, act, and function. But many of the impacts of high or unstable blood Phe can be managed, and even improved. There's still more you can do.

Children

diagnosed with PKU

Children
Teens

growing up with PKU

Teens
Adults

living with PKU

Adults

Take control of your PKU

Symptoms
Take note of your symptoms.

Clinic
Locate your closest clinic.

Events
Get involved in events near you.

Join the PKU & ME program for support and guidance on living a healthy life with PKU.

Upcoming events

Stay connected with the PKU community by attending an event or watching online.

June 15

Ogden, UT

Educational Event in Ogden
This event is intended for individuals with PKU age 18 and above.

June 15

Syracuse, NY

Educational Event in Syracuse
This event is intended for individuals with PKU age 18 and above.

June 22

Norwalk, CT

PKU Educational Event in Norwalk
This event is intended for caregivers and people of all ages with PKU.

Check out a summary of the PKU management guidelines