About PKU
▲
- How PKU Affects the Brain
  
  See how Phe impacts the brain.
- Managing PKU
  
  Tips for PKU management.
- Is It PKU?
  
  Feeling off? It could be PKU.
- Find a PKU Clinic
  
  Find a clinic near you.
Parents & Care Team
▲
- Parents & Care Team
  
  Start to build your circle of support today.
- Your Child & PKU
  
  Caring for your child with PKU.
- Planning for Lifetime Management
  
  How you can start healthy habits and maintain them.
Teen & Young Adults
▲
- Teen & Young Adults
  
  Learn about proper PKU management.
- Taking Charge of Your PKU
  
  Develop healthy habits that work.
- Sticking With
  PKU Management
  
  How to start and stay on track.
Adults
▲
- Adults
  
  Learn how you can improve symptoms.
- Living With PKU
  
  Protect your brain for life.
- Getting Back on Track
  
  Get help and support with management.
Events & Community
▲
- Upcoming Events
  
  Stay informed about upcoming events.
- Recipes
  
  PKU friendly recipes for any time.
- PKU Community
  
  Find support on social media.
Help & Support
▲
- PKU & ME
  
  A support program for people living with PKU.
- BioMarin Support
  
  Uncommon support for a rare disease.
- Resources & Advocacy
  
  Information for patients and advocates.

Get help with PKU management by involving your care team.

Managing PKU through regular visits with a care team is key.

Use the search bar to enter your 5-digit ZIP Code to find the PKU clinics closest to you.

Having trouble finding a clinic near you?

Call 1-844-PKU-FAQS (758-3277) to speak to someone about getting help with your PKU care.

PKU & ME is here to help you—
every day and every step of the way!

Download a clinic
discussion guide

View guide

Sign up for the
PKU & ME program today

Register now