This website is intended for residents of the United States of America interested in Phenylketonuria, also called PKU

Adults

Living a healthy life with PKU requires lifelong care.

Even if you’ve been away from the clinic or off management for some time, many of the symptoms of high or unstable blood phenylalanine (Phe) levels can be improved. You can improve your PKU management by using every available option for getting your blood Phe levels low and stable.

Learn how PKU symptoms can be improved.

Take charge of your PKU managment

Ways to help keep your brain healthy and focused

Get back on track by controlling blood Phe levels

“So many people say that PKU is a diet thing, but I think it is a brain thing.”

Learn how uncontrolled PKU can impact the way you think, feel, and act.

Are those PKU symptoms you are feeling?

Try the Symptom Checker

It’s time to find a PKU clinic.

Find a clinic near you

Talk to your doctor about current PKU treatment options.

Learn more about your options

A PKU event might be right for you.

Check for upcoming PKU educational events, and see if there is one in your area that you could attend.

Find a PKU event