Tools, resources & support for people with PKU
Explore some of the most commonly used resources:
Join an educational event for people with PKU
PKU affects everyone differently—take note of how it affects you
Ready to start the conversation with your healthcare team?
Browse the full library
Impact of High Phe
Symptoms of high blood Phe levels vary from person to person. Learn how high blood Phe levels may be affecting you and what you can do about it.
Clinic Discussion Guide
This tool can help you start the conversation with your healthcare team about finding the right PKU management plan for you.
My PKU Symptom Tracker
PKU affects everyone differently—use this questionnaire to note how its symptoms affect you.
Collecting Blood Phe at Home
Learn how to collect your blood Phe at home.
Explore our collection of recipes specifically developed for people with PKU.