See how Phe impacts the brain.
Tips for PKU management.
Feeling off? It could be PKU.
Find a clinic near you.
Start to build your circle of support today.
Caring for your child with PKU.
How you can start healthy habits and maintain them.
Learn about proper PKU management.
Develop healthy habits that work.
How to start and stay on track.
Learn how you can improve symptoms.
Protect your brain for life.
Get help and support with management.
Stay informed about upcoming events.
PKU friendly recipes for any time.
Find support on social media.
A support program for people living with PKU.
Uncommon support for a rare disease.
Information for patients and advocates.
PKU patients and advocates for lifelong management
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BioMarin coordinates events to help the PKU community learn how to manage and live with PKU. We invite you to join us by registering below for events hosted by BioMarin and featuring PKU specialists.
If you don’t see an event scheduled at an available time in your area, you can request an event here.
May 21, 2022 -
PKU Live Patient Event.
KUVAN® (sapropterin dihydrochloride) Tablet or Powder for Oral Solution is a treatment option that may be able to lower blood Phe levels in combination with a low-Phe diet.
You're now leaving PKU.com to view more details about Kuvan.
May 24, 2022 -
June 18, 2022 -
June 25, 2022 -
July 21, 2022 -
PKU virtual educational event.
August 27, 2022 -
Don’t see an event in your area? You can request an event by filling out a simple form.
We’re excited you're interested in learning more about PKU and meeting others in the community.
You're now leaving PKU.com to view more details about upcoming events.
Join the PKU & ME program for support and guidance on living a healthy life with PKU.