Protecting a developing brain from high blood phenylalanine (Phe) levels is crucial.
You can help your loved one manage PKU through a diet low in Phe, other forms of management, and regular visits with a PKU clinic. With proper management of blood Phe levels, a child with PKU can live a healthy life. PKU experts recommend starting management within the first week of life, using every available option, and continuing management through life.
Discover the best ways to care for a child living with PKU.
Get help with managing PKU in your day-to-day.
"I was learning about her condition. I didn’t know what to expect."
Discover how Joy learned the importance
of protecting her daughter's brain from
high blood Phe levels.
Delicious PKU-friendly meals
There’s a lot of talk about PKU online.
Meet other families living with PKU.
Join the PKU & ME program for support and guidance on living a healthy life with PKU.