This website is intended for residents of the United States of America interested in Phenylketonuria, also called PKU

Parents and care team

Protecting a developing brain from high blood phenylalanine (Phe) levels is crucial.

You can help your loved one manage PKU through a diet low in Phe, other forms of management, and regular visits with a PKU clinic. With proper management of blood Phe levels, a child with PKU can live a healthy life. PKU experts recommend starting management within the first week of life, using every available option, and continuing management through life.

Discover the best ways to care for a child living with PKU.

Get help with managing PKU in your day-to-day

“I was learning about her condition.
I didn’t know what to expect”

Discover how Joy learned the importance of protecting her daughters brain from high blood Phe levels

Doctor Icon

Talk to a doctor about current PKU treatment options

Friendly Meals

Delicious PKU-friendly meals

Online Chat

There’s a lot of talk about PKU online.

Meet Other Families

Meet other families living with PKU.