Develop healthy habits that work within your everyday life.
With PKU, it doesn’t take much to make a big difference. Whether you’re in school, at home, or at work, having a plan for managing PKU can be that difference.
Start making a plan for managing your PKU.
Staying on track with PKU means managing blood phenylalanine (Phe) levels.
"I knew that I needed to make a change and get back on management."
Find out why others made their journey back to a PKU clinic after going off diet.
Chat with others in the PKU community.
The symptoms of PKU can be subtle.
Talk to your doctor about how to manage your PKU.
Keep in mind
You may think that you have your PKU under control, but some of the symptoms of high or unstable blood Phe levels can be hidden. Many people with PKU don’t even recognize the symptoms—but the people around them do.
Whether or not you are “feeling” your PKU, your plan should include tracking your Phe levels and making regular visits to a PKU clinic.
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There could be one in your area that’s just right for you.
Join the PKU & ME program for support and guidance on living a healthy life with PKU.