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Develop healthy habits that work within your everyday life.

With PKU, it doesn’t take much to make a big difference. Whether you’re in school, at home, or at work, having a plan for managing PKU can be that difference.

Start making a plan for managing your PKU.

Staying on track with PKU means managing blood phenylalanine (Phe) levels.

"I knew that I needed to make a change and get back on management."


Find out why others made their journey back to a PKU clinic after going off diet.

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See how people with PKU manage symptoms.
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Chat with others in the PKU community.
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The symptoms of PKU can be subtle.
Keep in mind

You may think that you have your PKU under control, but some of the symptoms of high or unstable blood Phe levels can be hidden. Many people with PKU don’t even recognize the symptoms—but the people around them do.

Whether or not you are “feeling” your PKU, your plan should include tracking the Phe you eat and making regular visits to a PKU clinic.

Check below for more upcoming PKU events.

There could be one in your area that’s just right for you.

August 24

Cincinnati, OH

Educational Event in Cincinnati
This event is intended for individuals with PKU age 18 and above.

August 25

Cincinnati, OH

PKU Educational Event in Cincinnati
This event is intended for caregivers and people of all ages with PKU.

August 25

Washington, DC

Educational Event in Washington
This event is intended for individuals with PKU age 18 and above.

Join the PKU & ME program for support and guidance on living a healthy life with PKU.