This website is intended for residents of the United States of America interested in Phenylketonuria, also called PKU
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Teens and young adults

Develop healthy habits that work within your everyday life.

With PKU, it doesn’t take much to make a big difference. Whether you’re in school, at home, or at work, having a plan for managing PKU can be that difference.

Start making a plan for managing your PKU.

Tools for developing your PKU plan

Staying on track with PKU means managing blood phenylalanine (Phe) levels.

A guide to keeping your blood Phe levels in range

“I knew that I need to make a change and get back on management”

Find out why others made their journey back to a PKU clinic after going off diet.

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See how people with PKU manage symptoms.

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Chat with others in the PKU community.

Connect online

Checklist

The symptoms of PKU can be subtle.

Symptom checker

Doctor

Talk to your doctor about how to manage your PKU.

Treatment options

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Keep in mind

You may think that you have your PKU under control, but some of the symptoms of high or unstable blood Phe levels can be hidden. Many people with PKU don’t even recognize the symptoms—but the people around them do.

Whether or not you are “feeling” your PKU, your plan should include tracking your Phe levels and making regular visits to a PKU clinic.

Check for upcoming PKU events.

There could be one in your area that’s just right for you.

Find a PKU event